friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

Over 10 Years of Creating Hope

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

Our vision: One day the diagnosis of FSH Muscular Dystrophy will be followed by "...there is a treatment."

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Over $3.2 million

funded to date


Attracted to research

Check Out Your Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato

Video of 2017 auction by DJ Sean Denard

Latest News

Kirkland couple raises $3.2M for FSHD

— April 17, 2017

Kirkland Reporter article.

Progress Report: Structural studies of DUX4-DNA interaction

— March 24, 2017

Hideki Aihara PhD provides an update on his research into the structure of the Dux4 homeodomains in complex with…

Progress Report: FSHD myofibers cultured from human xenografts

— March 24, 2017

Dr. Robert Bloch provides an update on his research into xenografting.

Where the Funding Goes

— March 24, 2017

Amanda provides brief visuals on where your funding has gone within the USA and Worldwide.

Progress in Understanding FSHD Molecular Pathology

— March 11, 2017

Review of a newly published paper from Davide Gabellini's group.


Ask the Expert

Potential use of BET inhibitors for FSHD

by George Shaw

Q&A by Fran Sverdrup, a Research Fellow at Center for World Health and Medicine.
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