friends of FSH Research


Mission Statement

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD.

Purpose Statements

  • To solicit, develop, and fund scientific and clinical research of FSHD.
  • To conduct fund raising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to help advance the study and understanding of FSHD
  • To disseminate information about FSHD and encourage additional public support for FSHD research by raising public awareness of the need for more research funding.