friends of FSH Research


Where the Funding Goes

— March 24, 2017

Amanda provides brief visuals on where your funding has gone within the USA and Worldwide.

Potential use of BET inhibitors for FSHD

— March 11, 2017

Q&A by Fran Sverdrup, a Research Fellow at Center for World Health and Medicine.

Progress in Understanding FSHD Molecular Pathology

— March 11, 2017

Review of a newly published paper from Davide Gabellini's group.

Medical Equipment, Access Solutions and Respiratory Therapy

— February 28, 2017

Howard Chabner updates 2013 memo on recommendations for various types of medical and mobility equipment.

Research Opportunity

— February 9, 2017

The University of Washington is seeking individuals to participate in a research study aimed at identifying biomarkers of FSHD.