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For the past several years the FSHD Champions group, which comprises most of the FSHD organizations worldwide, including Friends of FSH Research, has compiled the funding by each group in order to gain an overall picture of total funding and where funds are allocated. This has helped each organization determine trends and possible areas of need. Yes, all areas in FSHD research are in need of additional funds, but some more than others. The facio therapies group in The Netherlands volunteered to compile the data this year into the annual report.
If you have questions regarding the FSHD Champions Research Funding Overview, do not hesitate to contact us. Note that data from AFM and Amis de FSHD were not received, and so those groups were not included in the report.