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Research Presentation Slides

Slide decks for Dr. Tapscott & Dr. Wang from the 27-Jan presentations.
At the request of many participants of the Wellstone FSHD Patient Day update, which was held from 1-4pm on the day of the Annual Auction, we have obtained copies of some of the pr…

Friends of FSH Research Summit Q&A

Patient, donor, and board member George Shaw asked key questions about what the Summit was all about.
George Shaw (donor and board member) asked program officer Abbi Engel about what the key lessons were and to identify what Friends learned at the Summit held on Leap Day and March …