Chronic Pain Has a Strong Impact on Quality of Life in FSHD.
A research paper on the characteristics and impact of pain on quality of life (QoL) in patients with facioscapulohumeral dystrophy (FSHD) was recently published in Muscle & Nerve … http://fshfriends.com/blog/chronic-pain-fshd/
Pre-Auction Table Captain/Sponsor Raffle
As a reward for organizing or paying a full table of ten (10), your name will be entered into a drawing for a certificate good for one (1) night’s stay at the brand new Lake Washi… http://fshfriends.com/blog/keep-calm-its-raffle-time/
Scott Q. Harper, PhD presents emerging molecular therapies for FSHD at FSHD Global event.
This video was produced by FSHD Global Research Foundation.
Dr. Scott Q. Harper recently presented a talk titled Emerging Molecular Therapies for FSHD at the annual Science Wee… http://fshfriends.com/blog/scott-harper-science-week/
Scott Q Harper, PhD reviews work at his lab at Nationwide Children's Hospital.
This webinar was produced by FSH Society.
Scott Harper reviews current work at his lab directed at molecular therapies for FSHD. Both Friends of FSH Research and FSH Society su… http://fshfriends.com/blog/emerging-molecular-therapies-fshd/
Leo H Wang, MD PhD provides a layman's description of the clinical features and molecular biology of FSHD.
Leo H Wang, MD PhD and Associate Professor in the Department of Neurology at the University of Washington provides a description of both the molecular biology of FSHD and clinical… http://fshfriends.com/blog/laymans-description-fshd/
Enjoy sips, sweets and making your own custom jewelry at the Color Bar. 20% of sales benefit FSHD research.
A perfect day for holiday shopping! Enjoy sips, sweets and making your own custom jewelry at the Color Bar! December 7 | 6pm — 9pm
Kendra Scott — Bellevue Square 179 Belle… http://fshfriends.com/blog/kendra-gives-back-party/
Howard Chabner addresses issues of air travel with a power wheelchair.
Reprinted with permission from original article (Sep-2017) by Howard Chabner. Howard writes articles on travel and accessibility.
I have facioscapulohumeral muscular dystrophy … http://fshfriends.com/blog/tips-air-travel-power-wheelchair/
Amy Campbell and Fran Sverdrup have recently published a paper on initial results of a screen for compounds that inhibit
The recent paper from Amy Campbell and Fran Sverdrup (see also our Ask the Expert article wherein Fran discusses his work on BET inhibitors) provides details on BETi compounds tha… http://fshfriends.com/blog/beti-compounds-alter-dux4-expression/
Our latest RFP is now open.
Friends of FSH Research has opened our September Request for Proposals process.
Friends of FSH Research is a Seattle-based non-profit that has been investing in FSHD research f… http://fshfriends.com/blog/september-2017-rfp/
George & Lynn's commitment to Friends of FSH Research is a natural fit due to their common goal of basic research.
Some people are visionaries and some people are doers. George and Lynn have a nice mix of both! In the late1990’s they began funding FSH research through their family foundation. … http://fshfriends.com/blog/george-lynn/
Washington State Governor Jay Inslee proclaims June 20th "FSHD Awareness Day."
June 20, 2017 marks the 2nd annual World FSHD Day, and we’re pleased to share this Proclamation from the State of Washington acknowledging it as “FSHD Awareness Day”. The word is … http://fshfriends.com/blog/world-fshd-day-proclamation/
Genea Biocells scientists presented work from four disease modeling projects.
Reprinted with permission.
Genea Biocells scientists presented work from four disease modeling projects at the 2017 Muscular Dystrophy Association (MDA) Scientific Conference i… http://fshfriends.com/blog/highlights-2017-mda-conference/
Thanks to you, we exceeded our Give BIG goal.
You did it! Our goal was exceeded for a total of $24,892 raised for FSH research! Our deepest gratitude to our GiveBIG Ambassadors for providing the matching funds and to everyone… http://fshfriends.com/blog/you-gave-big/
GiveBIG campaign sponsored by the Seattle Foundation.
GiveBIG by midnight tonight! Thanks to our GiveBIG Ambassadors, we're thrilled to announce that this year your GiveBIG donations up to $12,000 will be MATCHED!
Yes, the FIRST $… http://fshfriends.com/blog/givebig-today/